About print and distribute 2014 neonatal disease screening project plan notice poor areas 
 
 
The 2014-12-01 national health and population and family planning commission of the People's Republic of China
 
 
Countries who do women's and children's letter [2014] no. 1077 

 
Hebei, shanxi, Inner Mongolia, jilin, heilongjiang, anhui, jiangxi, henan, hubei, hunan, guangxi zhuang autonomous region, chongqing, sichuan, guizhou, yunnan province, Tibet autonomous region, shaanxi, gansu, qinghai, ningxia hui autonomous region, xinjiang uygur autonomous region health and family planning commission, disabled persons' federation:
    For the implementation of the "Chinese children development plan (2011-2020)" and "China's rural poverty alleviation and development program (2011-2020), found that in poor regions as soon as possible the newborn genetic metabolic diseases and neonatal hearing impairment diseases of children, and reduce the incidence of mental retardation and hearing disability children, improve the quality of the population, the decision in your province (area, city) neonatal disease screening programmes in poor areas. Will now the poor areas of 2014 newborn disease screening project plan (from the national health and family planning commission website for women's and children's health child health program download) printed and distributed to you, please the earnest implementation. 

General office of national health and family planning commission
General office of China disabled persons' federation
On November 24, 2014 

Poor area in 2014 newborn disease screening project plan 

For poor areas neonatal hereditary metabolic disease, early detection and newborn children with hearing impairment, reduce the incidence of mental retardation and hearing disability children, improve population quality, in 2014, using the special financial subsidy funds, newborn disease screening subsidy project implementation of poor areas.
One, the project objectives
(a) the overall goals. Detect participating provinces (autonomous regions and municipalities) in poor areas a newborn genetic metabolic disease benzene acetone urine (PKU) and congenital thyroid function decrease sickness (CH) and newborn children with hearing impairment, reduce the incidence of mental retardation and hearing disability children, improve population quality, promote the newborn disease screening to establish and perfect service network.
(2) specific goals.
1. Two kinds of genetic metabolic disease for 1.325 million cases of neonatal (PKU and CH) screening and newborn hearing screening.
2. The diagnosis of phenyl acetone urine and permanent rehabilitation of hearing impairment children in relief.
3. The project area the newborn parents of newborn disease screening witting rate above 60%.
Second, the project scope and content
(a) the project scope and object. 21 provinces, autonomous regions and municipalities directly under the special difficulties in 14 countries concentrated 364 counties of rural household newborns. See appendix 1 specific task.
(2) the content of the project.
1. Improve the newborn genetic metabolic disease and newborn hearing screening in the network, the organization carries out the newborn genetic metabolic disease and newborn hearing screening work.
2. Carrying out social mobilization and publicity activities. Through television, radio, newspaper, network, publicity slogans, in relevant project policies and newborn health knowledge propaganda, make the social from all walks of life to realize the importance of neonatal disease screening, to create a good social atmosphere for project smooth implementation.
3. Carry out project management and technical training. Screening related personnel at all levels for blood collection, laboratory testing, after hearing screening and early screening, diagnosis, referral, rehabilitation, recall, information management, and other special training, improve the level of project management and service delivery capacity.
4. Carry out various kinds of health education activities. Blood collection, screening, diagnosis mechanism by issuing propaganda methods of folding, opening health lecture to prepare pregnant women in pregnancy or already spread the importance of neonatal disease screening, screening technology and process, etc., improve the target population for the popularity and acceptance of the neonatal disease screening.
5. Genetic metabolic disease in neonatal blood collection, laboratory testing and diagnosis work. Genetic metabolic disease newborn blood collection agencies piece of blood collection, preservation, inspection and other work, screening center to do a good job of laboratory tests, positive cases diagnosed, providing treatment to children diagnosed advice.
6. To carry out the newborn hearing screening, hearing impairment diagnosis work. Screening agency to do at the beginning of newborn hearing screening, after screening, referral, and to work and make a diagnosis and give treatment agencies do a good job in neonatal hearing impairment of diagnosis, treatment, after visit, consultation, etc, providing treatment to children diagnosed hearing and language rehabilitation.
7. The children diagnosed with benzene acetone urine into new farming and major disease medical security to rehabilitation aid, on permanent hearing impairment of children diagnosed with its poor deaf children rehabilitation assistance project implementation rehabilitation assistance.
8. In quality control and assessment. Organizing experts to carry out project supervision and evaluation, understand the newborn disease screening to carry out the situation, and the screening and diagnosis and personnel for technical guidance.
Third, organize and implement the project
(a) organizational guarantee.
1. The family planning administrative department of public health and the disabled persons' federation departments at all levels to establish regular communication consultation work mechanism, research projects and major problems in information communication. At the national level is responsible for the development of project plan, determine the work target, organizing national supervision, timely research to solve problems in project implementation. At the provincial level in charge of provincial (autonomous regions and municipalities) the project organization, implementation and supervision, to formulate specific implementation plan. City (prefecture) and county (district) level is responsible for the project organization management and implementing the areas under their respective jurisdiction, to ensure the project progress and quality.
2. In maternal and child health care institutions set up a project management office, specify the specialized agencies and personnel in charge of project management work within their respective jurisdictions, including fund management, personnel training, health education, supervision, and submit the information collection.
3. Set up expert technical steering group, opinions and Suggestions for the decision of the family planning administrative department of public health, and in accordance with the unified project requirements, the quality control of project training, health education and technical guidance.
(2) the relevant institutional responsibilities.
Engaged in neonatal disease screening, diagnosis and treatment institutions must be in strict accordance with the "newborn disease screening technology standards (2010 edition)" the relevant requirements, scientific and standardized to carry out related work.
1. The genetic metabolic disease in pursuance of the newborn mechanism: specification for neonatal hereditary metabolic disease screening blood sampling and related information, and in accordance with the provisions, blood delivery to the newborn genetic metabolic disease screening center inspection; Strengthen the management of blood collection personnel of an organization and training.
2. Genetic metabolic disease newborn screening center: genetic metabolic disease in neonatal screening laboratory tests, suspicious positive cases, children with positive diagnosis and follow-up of recall and screening personnel training, health education work, establish a standardized laboratory quality control system, ensure the quality of the screening. All items every quarter to county project management office number, the number of children with positive feedback screening, such as the number of confirmed information.
3. The newborn hearing screening mechanism: in early newborn hearing screening, after screening, referral, and to visit and so on work; To do the registration of the basic information of the newborn hearing screening, statistics and reporting; In newborn hearing screening personnel training and publicity and education; Newborn hearing screening institution shall report to the project county project management office monthly number of screening, children with positive number.
4. The mechanism of diagnosis and treatment of neonatal hearing impairment: neonatal hearing impairment of diagnosis, treatment, after visit, consulting and rehabilitation treatment for work such as informed consent; Do a good job in neonatal hearing impairment diagnosis information registration, statistics and reporting; In neonatal hearing impairment in the diagnosis of personnel training and publicity and education, etc. For children diagnosed with permanent hearing impairment to feedback the project counties project management office, project management office will be confirmed by the project counties children information timely referrals to county disabled persons' federation.
5. Hearing language rehabilitation: according to the early childhood development rule and the special requirements of hearing impaired children, in diagnosis of permanent hearing impairment and hearing children's intervention and rehabilitation work.
(3) information management.
County (district) level of health care of women and children's project management office shall do a project on the basis of information statistics, analysis and management work, confirmed by the family planning administrative department of health agreed, after each quarter by the maternal and child health care level report to the superior health care of women and children, by the provincial maternal and child health care to the maternal and child health surveillance office, bureau of health and family planning commission after statistical analysis of women's and children's department.
County (district) level of disabled persons' federation to hearing impairment children listening intervention and rehabilitation and resettlement information statistics, analysis and management work, step by step submitted quarterly city (ground), provinces, autonomous regions and municipalities directly under the disabled persons' federation, the provinces, autonomous regions and municipalities directly under the disabled persons' federation level audit summary reports after the China rehabilitation research centre for deaf children, the China rehabilitation research centre for audit summary report after the China disabled persons' federation.
The family planning administrative department of public health and the disabled persons' federation departments at all levels share the hearing impairment children information such as diagnosis, referral and rehabilitation. Family planning department of public health found that children with hearing impairment and diagnose timely coordination of disabled persons' federation to rehabilitation, disabled persons' federation department shall regularly will hearing impairment children information such as diagnosis, referral and rehabilitation report (family planning) health administrative department of public health at the same level.
Four, fund and management
(a) the central government to provide special subsidy funds for the screening examination of diseases of newborn babies, a newborn subsidies of 120 yuan, of which two kinds of genetic metabolic disease screening subsidies 50 yuan, hearing screening subsidies of 70 yuan. Subsidies allocated using the standard determined by various provinces, autonomous regions and municipalities directly under the themselves.
(2) of the central government to the diagnosis of permanent hearing impairment and hearing children's intervention and rehabilitation work subsidy funds, save the children with hearing loss shall be borne by the disabled persons' federation system specific implementation work, for children diagnosed with permanent hearing impairment by project counties rehabilitation programs for disabled persons' federation to apply for national poverty. For children diagnosed with benzene acetone urine into the local scope of new farming and major disease health care subsidies.
(3) the family planning administrative department of public health at all levels to strengthen the use and management of funds, local finance department shall arrange necessary working funds, used in the project propaganda and mobilization, personnel training, quality control, health education, etc., ensure the smooth implementation of the project.
(4) special subsidy funds must be special fund is special, any unit or individual shall not be withheld, occupy or divert form.
Five, the project monitoring and evaluation
(a) the national health and family planning commission jointly with the China disabled persons' federation jointly formulate supervision assessment plan, organize regular inspection, to project implementation, quality control and effect of supervision and evaluation.
(2) project, implement step by step guidance and supervision and evaluation. Provinces, autonomous regions and municipalities), city (ground), county (district) level regularly organize supervision and evaluation on the implementation of the project, found that the coordinate to solve problems in time, to ensure that each work put in place, ensure the project implementation effect.
 
Attachment: 1. The neonatal disease screening project tasks for poor areas and capital allocation table. Docx
 
2. The neonatal disease screening project quarterly statistics. Poor areas docx
3. Poor areas neonatal disease screening programmes hearing impairment children referral form. Docx